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    You are here: Home / Bump Baby Posts / Hypothalamic Amenorrhea – A Lesson in Patient Advocacy and Personal Growth

    November 10, 2018

    Hypothalamic Amenorrhea – A Lesson in Patient Advocacy and Personal Growth

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    Being a female and having an irregular (or non-existent) period is NOT normal. Even if you are on a monthly form of birth control, it’s still very important to menstruate and ensure you are having a regular cycle, especially if you desire to become pregnant.

    Join me in this enlightening piece on the personal discovery of an infertility warrior and her realization of her diagnosis with hypothalamic amenorrhea.

    Hypothalamic Amenorrhea - A Lesson in Patient Advocacy and Personal Growth www.bumpstobaby.com #ttccommunity #weightrestoration

    Hello there advocates!

    Welcome back to the Patient Advocacy Series here on Bumps to Baby.

    Today, I’m delighted to introduce you to a fellow infertility warrior and dear friend of mine, Kelly Puryear (M.A., RDN/LDN, CSCS). Kelly has a very sensitive message to share with our audience today as she discusses her diagnosis of Hypothalamic Amenorrhea and journey of self-discovery in recognizing an unhealthy obsession with restrictive eating and over-exervising.

    If you have any questions on Hypothalamic Amenorrhea (HA) or are struggling with weight obsession and infertility, please get help. You deserve it!

    Okay, without further adieu now, meet Kelly.

    Infertility Struggles with Hypothalamic Amenorrhea

    Kelly, please share your story. When did you realize your doctor wasn’t listening to your needs? How did you emerge in becoming your own patient advocate? 

    It’s not normal NOT to get a period. Period. End of story.

    I knew that it wasn’t “normal” for me to not have a regular period for nearly 6 years, even though every doctor said that it was “normal” and “no big deal since you are on birth control.”

    To be honest, I started having irregular periods in my later teens after starting birth control when I was 13 years old and then irregular turned into non-existent when I entered college.

    I knew that I wanted to have children more than anything in the world and that would be impossible if I wasn’t having regular periods. After a little research, reading the AMAZING book No Period, Now What?, and listening to my own intuition, I asked my OBGYN to run some blood work.

    My hope was she would be able to identify the underlying reason as to why I was not ovulating and having a period.

    And, guess what, she did.  

    I was diagnosed with Hypothalamic Amenorrhea, a condition defined as an absence of menstruation for a period of months (or years), which is NOT normal.  My OBGYN referred me to a reproductive specialist right away to help me regain control of my health and most importantly, my fertility. 

    Truthfully, I knew deep down that it was in fact not normal for me to not have a period (since I am a woman, after all) and I also knew the probable cause – lack of body fat due to restrictive eating and over exercising.

    Since the medical professionals did not see an issue with my lack of ovulation, I just let it slide and didn’t make a big deal about it; that was until I got married and wanted to start a family right away!

    Moral of my story, when you have a feeling that something is not right … speak up! 

    Hypothalamic Amenorrhea - A Lesson in Patient Advocacy and Personal Growth www.bumpstobaby.com #ttccommunity #weightrestoration

    Any inspirational quotes that helped motivate you?

    Hypothalamic Amenorrhea - A Lesson in Patient Advocacy and Personal Growth www.bumpstobaby.com #ttccommunity #weightrestoration

    Luke 1:37 – For nothing is impossible with God. 

    That’s right! Nothing is impossible with God and my story has a happy ending! I was blessed with my (miracle) baby boy this past May and I truly have never been happier or healthier. In fact, thanks to my sweet boy, I have learned what being healthy really means.

    Kelly, thank you so much for sharing this. You are in fact right, listening to your intuition is KEY in recovery and learning to trust your body again (more on body trust, here, too!)

    And, again, please please please do not go this journey alone!

    And, as always my friends, sending you lots of love, hugs and baby dust!

    Liz

    « Nina's Story – A Scare That Lead to Her Own Advocacy Postpartum
    Running with Infertility – Tedi Palmer’s Story »
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